Patient Stories
The Patients We Remember
If you ask Charita about her daughter, she won’t start by telling you about ventilators or tracheostomies. She’ll tell you about the music. She’ll tell you how Anaya throws her head back when Beyoncé comes on. How Mariah Carey gets her moving. How even an oldies station can turn […]
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Jacob Zaragoza
Our son Jacob was born with 3p Deletion Syndrome and given no more than two years to live. His infectious smile and positive attitude helped him beat those odds and enabled him to live a full and happy life until he passed away in May 2024 at the age of 12.
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Lorenzos story
When Lorenzo first arrived at the Totally Infant Program at Totally Kids Rehabilitation Hospital, his family was facing an uncertain future. Born early at 35 weeks, Lorenzo was critically ill and spent time in a Level 4 NICU. While the hospital did an excellent job […]
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Matthew Cobley
My son Matthew was hit by a car while riding his bicycle in 2022. He was thrown headfirst into a cinder block wall; unfortunately he wasn’t wearing a helmet. Paramedics arrived on scene and Matthew was still breathing, albeit faintly. They rushed to a hospital where he underwent craniotomy surgery to remove the left side of his skull to relieve the pressure on his brain from the multiple subdural hematoma. Five days later surgeons removed the right side of Matthew’s skull because his brain was still swelling.
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