Patient Stories

Lorenzos story

When Lorenzo first arrived at the Totally Infant Program at Totally Kids Rehabilitation Hospital, his family was facing an uncertain future. Born early at 35 weeks, Lorenzo was critically ill and spent time in a Level 4 NICU. While the hospital did an excellent job […]

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Ava Beckham

When Ava was first admitted to Totally Kids, she was a quiet and cautious two-year-old with a diagnosis of short bowel syndrome and a failure to thrive. She was not yet walking, struggled with oral intake, and had limited energy. Mobility was a challenge, and

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Emma Moreno

“I want to take a moment to express my deepest and most heartfelt gratitude to Totally Kids Rehabilitation for their incredible support in helping me bring my daughter, Emma, home. Emma entered the world far too soon, arriving at just 26 weeks due to serious

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Ryion Jenkins

When Ryion arrived at our hospital, he had just survived a traumatic accident that ejected him from a vehicle. He sustained a severe traumatic brain injury and faced complex medical challenges. Dependent on a tracheostomy to breathe and a G-tube for nutrition, he was admitted

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A day at home

Transitioning back home is a significant milestone for any resident at Totally Kids, and for Marilyn, it’s a journey filled with exciting new experiences and meaningful moments. Recently, Marilyn had the chance to visit her home and spend a regular afternoon with her family. While

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Community Reintegration

At Totally Kids, community reintegration outings are a cornerstone of our rehabilitation program in the acute unit. These outings are designed to help patients and their caregivers transition smoothly from the clinical environment to real-world settings, all with the guidance and support of our therapeutic

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Zoey Barillas

My daughter Zoey was born at 28 weeks/4 days meaning that she was a micro preemie. She spent three months in the NICU and we were informed by her medical team at the hospital that she needed more time to learn how to nipple. They told us that the best place for Zoey was Totally Kids.

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Matthew Cobley

My son Matthew was hit by a car while riding his bicycle in 2022. He was thrown headfirst into a cinder block wall; unfortunately he wasn’t wearing a helmet. Paramedics arrived on scene and Matthew was still breathing, albeit faintly. They rushed to a hospital where he underwent craniotomy surgery to remove the left side of his skull to relieve the pressure on his brain from the multiple subdural hematoma. Five days later surgeons removed the right side of Matthew’s skull because his brain was still swelling.

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Jacob Zaragoza

Jacob Zaragoza

Our son Jacob was born with 3p Deletion Syndrome and given no more than two years to live. His infectious smile and positive attitude helped him beat those odds and enabled him to live a full and happy life until he passed away in May 2024 at the age of 12.

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Justin Lindemann

Justin Lindemann

I am eighteen years old, and I recently sustained two gunshot wounds. One bullet hit me directly in the heart while the other fragmented and hit my vocal cord, piercing my left lung and hitting my T1 vertebrae. I became paralyzed and my dreams were crushed. But Totally Kids gave me hope again.

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